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Advice I Give Myself
Welcome
to Advice I Give Myself – a blog about living with RA (Rheumatoid Arthritis)
and Fibromyalgia while raising kids, going to school and hopefully working
again someday. I call it Advice I Give Myself because these are the things I’ve
told myself that I think have made me do as well as I do. From the start – about six years ago – I’ve
slipped into a voice somewhere between coach and gentle grandmother. And I
always have pictured helping other people in the same situation. It just gave
my predicament some meaning to think if I figured out a better way, I could
share it. I’ve written about topics like having rough days, exercise
solutions, and journaling among
others. I suspect I may be just
distracting myself by picturing an audience reading and benefiting from my
experience but, hell, it works for me. So thank you for letting me fantasize
that I’m helping you; it helps me a lot.
Being
diagnosed with a chronic disease is like someone tossing you a frying pan while
you are already juggling six balls. Those balls are the rest of your life –
job, bills, kids, extended family, marriage – and it really can feel like a
circus (ok, enough with that metaphor). But I found that in addition
to spending more time on my physical health, I now had to pay
attention to my psychological health too. All the things I’d been able to
keep at bay crashed through and demanded to be addressed. Luckily, I found a
great therapist through my husband’s insurance and she made a huge difference.
I also found a lot of help in books. I’ve
listed some of my favorites but remember your issues will depend on your past,
not mine, so stay open and listen your own heart. Loving
What Is: Four Questions That Can Change Your Life, by Byron Katie and
Stephen Mitchell is a great book on a technique to challenge and change the
thoughts that are causing you pain. Nothing
Special: Living Zen, by Charlotte J Beck and Steve Smith is a wonderful
book on living in the moment.
This journey soon became one of “chronic wellness”,
not illness. I sincerely hope my experiences can help you or at least give you
a place to talk about what we’re going through. That’s why I’d like to open
this discussion. What books have given you hope? What sage advice do you give
yourself when you have to become your own “Dear Abby”? And what other topics would you like me to
cover here? |
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